The National Institute of Cancer “Regina Elena”, like other Irccs (Italian Research Hospitals), has the institutional imperative to develop protocols of excellence in its areas of expertise: basic and translational research, new therapies, patient management etc. As a consequence, the communication concerning the activities undertaken and the results obtained must respect high ethical and qualitative standards considering the potential impact that the news can have. The Institute’s Press Office wants to present the activities undertaken by the Center for Brain Tumor- Related Epilepsy (CET),as an example of these procedures.
The Press Office, in close collaboration with the Center’s personnel, has set up a series of actions for the diffusion (360) of the Center’s clinical and research activity and results, to different targets: the scientific community, trainees, patients, and the public. All actions respect in full the Institute’s mission of excellence in fighting cancer.
Communication actions were directed first to medical doctors and researchers, for whom training courses, seminars and meetings were organized, the most important being the International Symposium held in Venice last July. The CET, formally established by Regina Elena in 2005, was the first center of its kind in Europe and is still the only one in Italy. Its reputation has grown so much that recently two important universities, in Italy and U.S.A., have signed collaboration agreements for the research, training and development of new therapeutic protocols.
To provide information to patients and the public, the Press Office maintains high media interest in the topic of brain tumor-related epilepsy, through the periodical generation of news items, press releases, and editorials. Furthermore it promotes informational events for the general public, in coordination with LICE (Italian League Against Epilepsy) who formally recognized the CET, and with other volunteer associations, that in Italy have a key role in diffusing knowledge about medicine.
These activities finally merged in 2010, with the creation of a video presentation of the Center, distributed by various media, and a dedicated website: a true internet portal designed to highlight the state of the art of knowledge regarding this pathology. This site allows direct interaction with patients – over 100 emails received within this year – and specialists, who can benefit from a “reserved area” used to share information with colleagues.
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Lorella Salce   Press Office, I.F.O.- Ist. Nazionale Tumori Regina Elena e Ist. Dermatologico San Gallicano, Rome, Italy

Daria Limatola   Press Office, I.F.O.- Ist. Nazionale Tumori Regina Elena e Ist. Dermatologico San Gallicano, Rome, Italy

Simona Barbato   Press Office, I.F.O.- Ist. Nazionale Tumori Regina Elena e Ist. Dermatologico San Gallicano, Rome, Italy

Marta Maschio   Centre for Tumor Epilepsy, Ist. Nazionale Tumori Regina Elena, Rome, Italy

Daniela Renna   Press Office, I.F.O.- Ist. Nazionale Tumori Regina Elena e Ist. Dermatologico San Gallicano, Rome, Italy

Adriana Porta – Press Office, I.F.O.- Ist. Nazionale Tumori Regina Elena e Ist. Dermatologico San Gallicano, Rome, Italy

The National Institute of Cancer “Regina Elena”, like other Irccs (Italian Research Hospitals), has the institutional imperative to develop protocols of excellence in its areas of expertise: basic and translational research, new therapies, patient management etc. As a consequence, the communication concerning the activities undertaken and the results obtained must respect high ethical and qualitative standards considering the potential impact that the news can have. The Institute’s Press Office wants to present the activities undertaken by the Center for Brain Tumor- Related Epilepsy (CET),as an example of these procedures.
The Press Office, in close collaboration with the Center’s personnel, has set up a series of actions for the diffusion (360) of the Center’s clinical and research activity and results, to different targets: the scientific community, trainees, patients, and the public. All actions respect in full the Institute’s mission of excellence in fighting cancer.
Communication actions were directed first to medical doctors and researchers, for whom training courses, seminars and meetings were organized, the most important being the International Symposium held in Venice last July. The CET, formally established by Regina Elena in 2005, was the first center of its kind in Europe and is still the only one in Italy. Its reputation has grown so much that recently two important universities, in Italy and U.S.A., have signed collaboration agreements for the research, training and development of new therapeutic protocols.
To provide information to patients and the public, the Press Office maintains high media interest in the topic of brain tumor-related epilepsy, through the periodical generation of news items, press releases, and editorials. Furthermore it promotes informational events for the general public, in coordination with LICE (Italian League Against Epilepsy) who formally recognized the CET, and with other volunteer associations, that in Italy have a key role in diffusing knowledge about medicine.
These activities finally merged in 2010, with the creation of a video presentation of the Center, distributed by various media, and a dedicated website: a true internet portal designed to highlight the state of the art of knowledge regarding this pathology. This site allows direct interaction with patients – over 100 emails received within this year – and specialists, who can benefit from a “reserved area” used to share information with colleagues.

A copy of the full paper has not yet been submitted.

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