PCST Network

Public Communication of Science and Technology


My genes
Should or should I not know who I am?

Ana Mena  

Would you like to know everything about your genetic information? Over the last decades, scientific and technological advances have made possible the access to individual genetic information. However, this possible access can lead to social and ethical questions that have to be considered at the individual and societal level. How would we react if we knew to be carrying a mutation in a gene that could result in a disease? Could we deal with that information and with the probability of having or not that disease? Who should have access to that information? The animated short movie "My genes: should or should I not know who I am?" aims to create discussion over this issue, with the ultimate goal of driving the reflection of the target audience - young people from 14 to 18 years old - on their own choices. Starting with concepts of heredity and molecular biology, the animation ends with ethical questions, to which there are no right answers. The movie layout and argument was designed taking into consideration the age of the target public. This digital resource is freely available on the social networks, allowing its broadcasting to a wider audience. It can be used in schools, as support material for teachers, or in other contexts. This animation runs in Portuguese but versions with Portuguese and English subtitles are also available. https://www.youtube.com/watch?v=RSQobQdVtO0

A copy of the full paper has not yet been submitted.